Monday, June 2, 2008

RAK for a 13 year old boy. He has a tumor on his brain stem with brain lesions

He is 13 years old. He has a tumor on his brain stem with brain lesions.

He loves movies, video games, going to church with family, comics, and wrestling (especially John Cena).

Here is a little biography of La'Cyrus and his illness off of the website...thought you might like to read more...

Praise the Lord. I want to take this opportunity to tell you a brief story about La'Cyrus and how his illness took place. He was born on April 19, 1995, weighing 6 lbs. 9 ozs. He was always a happy healthy little boy. At age 3, he broke the big bone in his left leg. During this break, we found out that he had soft and fragile bones which could easily be broken. So as a little boy growing up, wanting to do all the things little boys do, he was limited. We were afraid to let him play any sports or horseplay. Although La'Cyrus was limited from a lot of things, he has had a GREAT life. For enjoyment we have more family activities.

When he started school, he grew very close to his teachers' hearts. Some would say they loved him as if he were their child and I appreciate those who showed and gave their love to him.

As time went on, in August of 2007, La'Cyrus was in the 6th grade. His teachers were wonderful and have compassion for what they are called to do. August 25, 2007, was the last day La'Cyrus was in school.

On Saturday, August 26, 2007, he woke up early that morning crying. He said he could not see clearly and he was numb on the whole right side of his body. We took him to his family doctor who ordered an MRI. When the test results came back, we were referred to Jackson, MS. There, at Blair Batson, they did many tests and found that La'Cyrus had lesions in his brain stem and at the base of the brain. He was admitted that same day.

They continued to do more tests to see if they could operate or do a biopsy. We found out it was inoperable due to the location. The plan was to treat him and pray to see a decrease in the lesions or treat them until they were gone. La'Cyrus is being treated for ADEM (Acute Disseminated Encephalomyelitis). This causes the central nervous system to not function like it should. La'Cyrus has a problem with balance when walking, he has double or blurred vision, the right side of his body is weaker than left, his hearing in his right ear is dull, his appetite is poor, and his memory is not the same.

In April 2008, La'Cyrus returned to the hospital due to his heart rate dropping below 40. He was in ICU for several days. The doctors have sent him home and now we wait to go back to see his neurologist soon. We were told the lesions have spread.

Why did this happen? I don't know. What I do know is, God is in control of this situation and yours too. Whether happy or sad, sick or health, poor or wealthy, black or white, God has the final say. So why complain?

As each day passes, I see new miracles each day. Just another smile from La'Cyrus brightens my day. I find myself being thankful for what is, than what is not.

Please continue to pray for La'Cyrus. Prayers move mountains.

He loves getting mail. Even though he can't read as well as before, he enjoys having someone read the cards and mail to him.

I sent an e-mail to John Cena via his MySpace explaining this boy's situation and asking if there was something special he could do for La'Cyrus. I haven't heard anything yet, but I'm still hopeful that he will come through!!

If you'd like to send a card to La'Cyrus, please feel do:

La'Cyrus P.
P.O. Box 924
Bay Springs, MS 39422

This is through the site Make a Child Smile. So you can just sign your name, or if you want to put MACS under it, that is OK too.

Thanks for helping to make a child smile!!

The pictures aren't so great, much better IRL!

I have no idea what I am going to write or stamp on it yet!!


Julia Aston said...

Gosh Deb - what a story - I will pray for La'Cyrus and get a card off to him.... thanks for bringing this to our attention!

Lim said...

I'm spechless for so many reason, but, I'm in. You know that.